Online Course Activities and Links

Weekly Activities and Websites/Articles/Links

Welcome! Below you will find your weekly activities and websites and articles of interest.  Please complete the activity forms (questions) and then press submit.  You will receive an email response with feedback after you submit each assignment.  It is not mandatory for you we read or review the weekly websites and articles. They are there for more information.

If you have questions, please send an email to Brianne at [email protected]

Week 1 Activity: Introduction and Overview

Track 1 and 2

Please answer the following questions to help me get to know you and what brought you to this course. When you have completed the information, please click submit. You will receive an email response with feedback from Brianne.

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Week 2 Websites and Articles of Interest

Week 2 Websites

CuddleCotwww.flexmort.com or SOBBS (Stories of Babies Born Still) - www.storiesofbabiesbornstill.org

http://www.youtube.com/watch?v=OAopculVHmg

Flexmort CuddleCot US -  http://www.youtube.com/watch?v=1mut68CIAdM

         For more information: www.flexmort.com or SOBBS (Stories of Babies Born Still) - www.storiesofbabiesbornstill.org

Caring Cradlehttp://caringcradle.com

Cenotaph Cradle - www.cenotaphproducts.com

Perinatal Hospicewww.perinatalhospice.org/

Carrying To Termhttp://carryingtoterm.org/

Ending A Wanted Pregnancyhttps://endingawantedpregnancy.com


Week 2 Articles

"Many miscarriages are still a mystery. A new test could give women faster answers."

https://www.nbcnews.com/health/womens-health/many-miscarriages-are-still-mystery-new-test-could-give-women-n1131871

"Holding Stillborn Babies: Medical professionals should help mothers to hold their stillborn babies"

https://www.psychologytoday.com/us/blog/begin-again/201411/holding-stillborn-babies

"On Being Both Pro-Life and Pro-Choice"

https://stillstandingmag.com/2014/06/05/pro-life-pro-choice/?fbclid=IwAR0cwhG0hScgmg-mgy1BD5HchYSnqyLcdbqXqcCCkgkOMDuYyN243LLoQyM


Video - Hospital: Twin Story

https://www.facebook.com/watch/?v=1310538725765170

"Our child received a devastating diagnosis before she was born. We decided to protect her."

https://www.statnews.com/2019/01/07/devastating-diagnosis-before-birth-trisomy-18/

"Mom Carries Dying Baby to Term to Donate Her Organs: She'll Give 'Other Babies a Second Chance'"

https://people.com/human-interest/krysta-davis-baby-rylei-dying-organ-tennessee/

"I'm a Former NICU Nurse. Trump's Claims About Later Abortion Couldn't Be More Wrong."

https://rewire.news/article/2019/04/30/im-a-former-nicu-nurse-trumps-claims-about-later-abortion-couldnt-be-more-wrong/?fbclid=IwAR2xo_bQyPJKzpIr_jmv5A-vMFWkHXk2H28nrXKV0B8G5hIeSn7845WJZF8

"I Want To Tell You What It's Like to Get An Abortion At 17 Weeks, Because It Matters"

https://www.huffpost.com/entry/abortion-17-weeks_n_5a85f603e4b05c2bcac8fd28?fbclid=IwAR3Mpf008Cwrvu7p89GoB5HNmF-J-CwapBGpM1MxE7QqTxXHFHVtqsva7XE

Week 2 Activity: Life-Limiting Diagnosis

Track 2

This is a two part activity:

Part 1 - Review the following websites:

~ Carrying to Term – http://carryingtoterm.org

~ Ending a Wanted Pregnancy - http://endingawantedpregnancy.com


Part 2 - Answer the following questions.

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Week 3 Websites and Articles of Interest

Week 3 Activity: Secondary Loss

Track 2

This is a two part activity:

Part 1: Secondary Loss - Create your own Secondary Loss chart. Think about a loss you have experienced. It can be a pregnancy or infant loss or another significant loss in your life. Write this loss in the center circle. Think of at least five (5) secondary losses you experienced in relation to the primary loss. Take a picture of your completed chart and email it to [email protected]

Part 2: Answer the questions below.


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Week 4 Websites and Articles of Interest

Websites

Circle and Bloom Heal+ Recovery Program

https://circlebloom.com/free-healing-recovery


Articles

"Yoga For PTSD following Pregnancy and Infant Loss"

https://www.psychologytoday.com/us/blog/begin-again/201410/yoga-ptsd-following-pregnancy-and-infant-loss

"Mental Illness After Miscarriages Is Common, But Women Aren't Getting Support"

https://www.huffingtonpost.ca/2018/06/08/miscarriage-mental-health_a_23453658/

"Maternal Depression as a Consequence of Stillbirth"

https://www.psychologytoday.com/us/blog/begin-again/201502/maternal-depression-consequence-stillbirth

"Miscarriage and loss: Losing a pregnancy can affect a woman - and her family - for years, research finds."

https://www.apa.org/monitor/2012/06/miscarriage

"After miscarriage, I was rocked by depression. Like many other women, I didn't get follow-up care for the loss."

https://www.washingtonpost.com/health/after-miscarriage-i-was-rocked-by-depression-like-many-other-women-i-didnt-get-follow-up-care-for-this-loss/2019/11/29/bd3dcff0-0729-11ea-8292-c46ee8cb3dce_story.html

Week 4 Activity: Article Review

Track 2

Read one of the Week 4 articles above and answer the following questions:


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Week 5 Websites and Articles of Interest

Websites

Pregnancy After Loss Support

https://pregnancyafterlosssupport.org/

Korrig'Anne (illustrator)

https://korrigane.com


Articles

"The Emotional Impact of Loss: Coping With Depression & Anxiety in Post-Loss Pregnancies and Beyond"

https://www.psychologytoday.com/us/blog/begin-again/201405/the-emotional-impact-loss

"Not Everyone Gets a Rainbow Baby"

https://stillstandingmag.com/?s=not+everyone+gets+a+rainbow

"Why Rainbow Baby Mamas Give us 'All the Feels'"

https://www.huffpost.com/entry/why-rainbow-baby-mamas-give-us-all-the-feels_b_58dc09d5e4b04ba4a5e25018

"Chasing the Elusive Rainbow"

https://stillstandingmag.com/2019/12/17/chasing-the-elusive-rainbow/


Week 5 Activity: Pregnancy After Loss Website

Track 2

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Week 6 Websites and Articles of Interest

Week 6 Activity: Community Events

Track 2

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Week 7 Articles of Interest

Articles

"Why fear should not keep you from announcing a baby on the way - Pregnancy After Loss Support"

https://pregnancyafterlosssupport.org/fear-early-pregnancy-announcement/

"Postpartum Health"

https://stillbirthday.com/2011/07/postpartum-health/

"For mothers who lose their babies, donating breast milk is a healing ritual"

https://theconversation.com/for-mothers-who-lose-their-babies-donating-breast-milk-is-a-healing-ritual-104049?fbclid=IwAR2fkCBQ0zmFLbfuIOX7FPy7cWx6Iq3lqV03FcLp2MOSZvTL0WIGu-71Vp4

"Lactation after Loss: A Guide for Bereaved Mothers"

https://motherwear.typepad.com/files/final-us-lactation-after-loss-brochure.pdf

"Lactation after Perinatal, Neonatal, or Infant Loss"

http://www.lunalactation.com/final_clinical_lactation.pdf

The stillbirthday.com website offers advice and support for lactation after loss:

https://stillbirthday.com/2012/06/post-loss-lactation/

#SleepOnSide: Why We Need to Talk About Stillbirth

https://the-motherload.co.uk/stillbirth-telling-truth/

"The Japanese Art of Grieving a Miscarriage"

https://www.nytimes.com/2017/01/06/well/family/the-japanese-art-of-grieving-a-miscarriage.html

"Adopting a Buddhist Ritual to Mourn Miscarriage, Abortion"

https://www.npr.org/2015/08/15/429761386/adopting-a-buddhist-ritual-to-mourn-miscarriage-abortion

"Indian women more prone to miscarriages, finds study"

https://timesofindia.indiatimes.com/city/mumbai/Indian-women-more-prone-to-miscarriages-finds-study/articleshow/50336353.cms

"For Indian Women Who Have Miscarriages, Grief is Met with Silence and Shame"

https://www.vice.com/en_us/article/8x49mb/for-indian-women-who-have-miscarriages-grief-is-met-with-silence-and-shame

"Why American Babies Die"

https://www.theatlantic.com/health/archive/2014/10/why-american-babies-die/381008/

"If a whale can hold its dead calf for days, why can't human parents do the same?"

https://www.theglobeandmail.com/life/first-person/article-if-a-whale-can-hold-its-dead-calf-for-days-why-cant-human-parents-do/?fbclid=IwAR3o5RBKCVedechtEKTiNRujjIDVRUqlb5m6acZg6t4pFGuyBVhkBRyqUno

"Let Us Be The Whale - A Grieving Mother's Request"

https://unexpectedfamilyouting.com/2018/07/27/let-us-be-the-whale-a-grieving-mothers-request/

"'Tour of grief is over' for killer whale no longer carrying dead calf"

https://www.cnn.com/2018/08/12/us/orca-whale-not-carrying-dead-baby-trnd/index.html

"Mourning Mother Dolphin Has Been Carrying Body of Dead Calf on Her Back for Days"

https://people.com/pets/mourning-mother-dolphin-carries-dead-baby-for-days/

"Returning to Work After Loss"

http://nationalshare.org/going-back-work-after-loss/

"FDA shouldn't allow politics to hurt women suffering miscarriage"

https://www.statnews.com/2018/06/22/miscarriage-women-fda-misoprostol-mifepristone/

Week 7 Activity: Article Review

Track 2

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Week 8 Resources

Movies, Films, and Documentaries

Don't Talk About the Baby (2018)

          Documentary Trailerhttps://youtu.be/8IDCYV74xpI

          Documentary Trailer 2https://youtu.be/hFFfeJFLxPQ

          Websitewww.DontTalkAboutTheBaby.com

          Facebook Pagewww.Facebook.com/DTATBfilm

          Article'"Don't Talk About the Baby" Challenges The Silence About Stillbirth, Miscarriage, and Infertility'

                     https://thefederalist.com/2019/01/16/dont-talk-about-baby-probes-the-silence-around-infertility-and-miscarriages/

Return to Zero (2014)

          Film Trailerhttps://youtu.be/3kB076Za0uE

            Website - www.rtzhope.org

The House I Keep (2011)

           Linkhttps://www.imdb.com/video/vi1716689433?playlistId=tt1647392&ref_=tt_ov_vi


Decision Making Resources/Life Limiting Diagnosis

CarryingToTerm: A Place for Support

            Websitehttp://carryingtoterm.org

Ending a Wanted Pregnancy

            Websitehttps://endingawantedpregnancy.com/

Perinatal Hospice & Palliative Care

            Websitewww.perinatalhospice.org


Online Resources

Bears of Hope - Pregnancy and Infant Loss Support

www.bearsofhope.org.au/index.html

Earth Mama, Angel Baby - Baby Loss and Miscarriage Gifts

www.earthmamaangelbaby.com/baby-loss-comfort

Faces of Loss, Faces of Hope

www.facesofloss.com

First Candle

www.firstcandle.com

GrievingOffers support for those who have experienced loss but also has a group specifically for those who have lost a child.

www.grieving.com

Grieving Dads: To the Brink and Back

https://grievingdads.com/

Healing Hearts Baby Loss Comfort

www.babylosscomfort.com

HUGS from ABOVE - HUGS from ABOVE is a group that makes teddy bears out of your loved one’s clothes.

www.facebook.com/grammybears

M.E.N.D. (Mommies Enduring Neonatal Death)

www.mend.org

M.I.S.S. Foundation

www.missfoundation.org

Now I Lay Me Down To Sleep (NILMDTS)

www.nowilaymedowntosleep.org

October 15th

www.october15th.com

Postpartum Progress

www.postpartumprogress.com

Pregnancy After Loss Support

www.pregnancyafterlosssupport.com

Pregnancy & Infant Loss Awareness of Washington County, MD

www.paila-wcmd.com

Pregnancy Loss and Infant Death Alliance (PLIDA)

www.plida.org

Project 52

http://www.p52website.com/trees-to-remember-nomination-form/

Return to Zero: Hope - A community of bereaved parents and their providers transforming the culture of pregnancy and infant loss through: Healing retreats, outreach and education, peer support and community, an empowerment.

www.rtzhope.org

Share Pregnancy & Infant Loss Support, Inc.

www.nationalshare.org

Stillbirthday

www.stillbirthday.com

Still Standing Magazine

www.stillstandingmag.com

The House I Keep

www.thehouseikeep.com


Books

“A Gift of Time: Continuing Your Pregnancy When Your Baby’s Life Is Expected to Be Brief”

By Amy Kuebelbeck and Deborah L. Davis, Ph.D. (2011)

“A Walk through the Storm”

By Hazel Flint and the families of Matties Memory (2013)

“Companioning at a Time of Perinatal Loss: A Guide for Nurses, Physicians, Social Workers, Chaplains and Other Bedside Caregivers”

By Jane Heustis, R.N. and Marcia Jenkins, R.N. (2005)

“Couple Communication after A Baby Dies: Differing Perspectives”

By Sherokee Ilse and Tim Nelson (2008)

“Empty Cradle, Broken Heart: Surviving the Death of Your Baby”

By Deborah L. Davis, Ph.D. (1996)

“Empty Womb, Aching Heart: Hope and Help for Those Struggling with Infertility”

By Marlo Schalesky (2001)

"Expecting Sunshine: A Journey of Grief, Healing, an Pregnancy after Loss"

By Alexi Marie Chute (2017)

"Grieving Dads: To the Brink and Back"

By Kelly Farley with David Dicola (2012)

“Grieving the Child I Never Knew: A devotional companion for comfort in the loss of your unborn or newly born child”

By Kathe Wunnenberg (2001)

“I’ll Hold You in Heaven: Healing and Hope for the Parent Who Has Lost a Child through Miscarriage, Stillbirth, Abortion or Early Infant Death”

By Jack Hayford (2003)

"Joy at the End of the Rainbow: A Guide for Pregnancy after Loss"

By Amanda Rose-White (2017)

“May We All Heal: Playbook for creative healing after loss”

By Nathalie Himmelrich & Kerstin Poth (2016)

“Not What We Were Expecting (A Memoir)”

By Angela Dawn Vesely (2014)

“Only God Knows Why: A Mother’s Memoir of Death and Rebirth”

By Amy Lyon (2012)

www.amylyon.com

“Pain, Heartache and Hope: True Stories of Real Men and Women Coping with Miscarriage, Infertility, Stillbirth and the Loss of a Child”

By Robin Elizabeth Bear (2000)

“Sam and Finn”

By Kate Polley

“Shelter Us”

By Laura Nicole Diamond (2015)

“Sufficient Grace”

By Kelly Gerken (2014)

“The Invisible Pregnancy: Give Birth to Healing”

By Heidi Faith, CCBE, CCLD, SBD (2012)

“Three Minus One: Stories of Parents’ Love & Loss”

Edited by Sean Hanish & Brooke Warner (2014)

“You Are Not Alone”

By Dawn Kidd (2013)

“You are the Mother of All Mothers: A message of hope for the grieving heart”

By Angela Miller (2014)

Books for Children

“Sam and Finn”

By Kate Polley

www.personlisedchildlossbook.com

Also available in a customized version, personalized with your child’s name.

“Ethan’s Butterflies: A Spiritual Book for Parents and Young Children after a Baby’s Passing”

By Christine Jonas-Simpson (2006)

“Something Happened: A book for children and parents who have experienced pregnancy loss”

By Cathy Blanford (2008)

"The Invisible String"

By Patrice Karst (2000)

“We Were Gonna Have a Baby, But We Had an Angel”

By Pat Schwiebert (2003)

For Fathers

Websites

Grieving Dads: To the Brink and Back -  http://grievingdads.com

A Blog for Fathers When a Baby Dies -  http://fathersgrievinginfantloss.blogspot.com/

Books

"Grieving Dads: To the Brink and Back"

by Kelly Farley with David Dicola (2012)

"A Guide for Fathers: When A Baby Dies"

by Tim Nelson (2004)

"When Men Grieve: Why Men Grieve Differently and How You Can Help"

by Elizabeth Levang (1998)

Pregnancy After Loss

Books

Pregnancy After Loss Support Websitewww.pregnancyafterlosssupport.org

Pregnancy After Loss Bill of Rights - https://pregnancyafterlosssupport.org/pregnancy-after-loss-bill-rights/

Pregnancy After Loss Affirmations - https://pregnancyafterlosssupport.org/subscribe-to-our-newsletter/

Books

“Joy at the End of the Rainbow: A Guide to Pregnancy After Loss”

By Amanda Ross-White

“Expecting Sunshine: A Journey of Grief, Healing, and Pregnancy After Loss”

By Alexis Marie Chute

“Pregnancy after a Loss: A Guide to Pregnancy after a Miscarriage, Stillbirth, or Infant Death”

By Carol Cirulli Lanham

“Trying Again: A Guide to Pregnancy After Miscarriage, Stillbirth, and Infant Loss”

By Ann Douglas and John R Sussman, M.D.

“Expecting with Hope: Claiming Joy When Expecting a Baby After Loss”

By Teske Drake

Books to Read to Your Rainbow Baby

“A Rainbow Baby Story: The Rainbow After the Storm”

By Crystal Falk and Kim Roman

“Happy Tears and Rainbow Babies”

By Natasha Carlow

“Patiently Waiting for Hope”

By Arnold Henry

“Perfectly Imperfect Family”

By Amie Lands”

“Our Little Rainbow”

By Sabrina M. Crawford

“These Precious Little People”

By Frankie Bunker

“To My Rainbow Baby with Love”

By Tamekia McCauley

“You are My Rainbow”

By Mary Kavacs

Postpartum Depression and Maternal Mental Health

TheBlueDotProject

“The Purpose of the TheBlueDotProject is to raise awareness of maternal mental health disorders, proliferate the blue dot as the symbol of solidarity and support, and combat stigma and shame.”

www.thebluedotproject.org

2020 Moms

“2020 Mom, founded in 2011 as the California Maternal Mental Health Collaborative, has evolved as a national organization with a mission: Closing gaps in maternal mental health care through education, advocacy, and collaboration.”

https://www.2020mom.org/

Postpartum Progress

“Postpartumprogress.com is the world’s most widely-read blog dedicated to maternal mental illness. It offers warm, positive, in-depth information, support and hope for all pregnant and new moms who experience postpartum depression and all other mental illnesses related to pregnancy and childbirth, including postpartum anxiety, postpartum OCD, depression or anxiety during pregnancy, post-adoption depression, postpartum PTSD, bipolar, peripartum onset/postpartum bipolar, depression after miscarriage or perinatal loss and postpartum psychosis.”

http://www.postpartumprogress.com/

Postpartum Support International (PSI)

Postpartum Support International (PSI) was founded in 1987 by Jane Honikman with the purpose of the organization is to increase awareness among public and professional communities about the emotional changes that women experience during pregnancy and postpartum.

http://www.postpartum.net/

When the Bough Breaks

“When the Bough Breaks is a feature length documentary about postpartum depression and postpartum psychosis. Narrated and Executive Produced by Brooke Shields, this shocking film uncovers this very public health issue which affects one in five new mothers after childbirth. The film follows Lindsay Gerszt, a mother who has been suffering from PPD for six years. Lindsay agrees to let the cameras document her and give us an in depth look at her path to recovery. We meet women who have committed infanticide and families who have lost loved ones to suicide. Babies are dying, women aren't speaking out and the signs are being missed. When The Bough Breaks takes us on a journey to find answers and break the silence.

https://www.whentheboughbreaksfilm.com/#!/


Infertility

RESOLVE: The National Infertility Association

“RESOLVE exists to improve the lives of people living with infertility. One in eight U.S. couples of childbearing age is diagnosed with infertility. RESOLVE addresses this public health issue by providing community to these women and men, connecting them with others who can help, empowering them to find resolution and giving voice to their demands for access to all family building options. RESOLVE is not a religious affiliated organization.”

https://resolve.org/


Other Resources

Butterfly Release Company

We have used this company for seven years for our annual butterfly release and family picnic.

www.butterflyreleasecompany.com

#ihadamiscarriage

“Dr. Jessica Zucker is a Los Angeles-based psychologist and writer specializing in women's reproductive and maternal mental health. Jessica specialized in this field long before experiencing a second trimester miscarriage firsthand. Jessica created and launched the #IHadAMiscarriage campaign with her first New York Times piece in 2014 with the aim of addressing the cultural silence.” She also sells cards, prints, signs, and apparel to help support those who have had a pregnancy or infant loss.

http://shop.drjessicazucker.com/about/


Music

"Small Bump" By Ed Sheeran - https://youtu.be/A_af256mnTE

Week 8 Activity: Film Review

Track 2

Also suggested for Track 1

Although, the weekly activities are for Track 2 students, I highly recommend that Track 1 students also view both films.


Part 1: I originally planned to have you watch and review one film, but I think both films are extremely important. Please watch "Don't Talk About the Baby" and "Return to Zero." Write your thoughts on each film separately. I recommend that you take notes while you watch each film. I look forward to reading your thoughts on each film.


During Week 3, we discussed coping strategies of invisible grief. While you watch "Return to Zero," notice what coping strategies are used by Aaron and Maggie to deal with their grief. Include what you observe in your review.


Part 2: This is not required. If you know of other great resources to add to this list, please submit them with your film reviews. I am always looking for more resources to provide families and professionals.

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Week 9 Activity: Community Project

Track 2

Your Community Project is to help you identify what resources are in your community. You may include your town, county, tri-state area, etc. For example, I live in Maryland, but I within minutes from West Virginia and Pennsylvania. I usually include resources for my hometown and the nearest towns in West Virginia and Pennsylvania.

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Week 10 Activity: Interview Project

Track 2

There are two options for this Interview Project.

1. Interview someone who has experienced a pregnancy or infant loss. Answer the following questions. If the individual has experienced multiple losses, please include that in your interview.

2. If you have experienced a pregnancy or infant loss yourself, you may answer the questions and describe your experience. If you have had multiple losses, please describe how each loss was different for you.

Which option did you chose?*
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Week 10: Post-Test

Track 1 and 2

You must receive at least an 80% on this Post-Test and complete the Course Evaluation to receive your Certification of Completion. You can take this post-test as many times as needed.

7. Everyone grieves and copes the same way after a pregnancy loss.*
8. A perinatal loss should be defined by the individual experiencing the loss.*
14. A higher number of parents receiving a severe prenatal diagnosis choose to end the pregnancy than those who chose to continue the pregnancy.*
15. SIDS is preventable.*
16. SIDS is the leading cause of death in babies between 1 week and 1 year of age.*
20. Infertility affects women more often then men.*
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Course Evaluation

Track 1 and 2

Please complete the following Course Evaluation. This must be completed to receive your course certificate.


Thank you for your feedback!

1. How well did this course identify types of losses and their rate of occurrence?*
2. How well di this course identify primary and secondary losses are relevant to pregnancy and infant loss?*
3. How well did this course identify mental health concerns associated with pregnancy and infant loss?*
4. How well did this course describe decision making and planning strategies for families coping with a life limiting diagnosis during pregnancy?*
5. How well i this course identify ways to help families grieve and make keepsakes?*
6. How effective was the presenter?*
7. Was the overall goal/purpose of the course met?*
8. How effective were the teaching methods?*
9. How well did the content relate to the course objectives?*
10. How relevant was this course in meeting your personal/professional needs/interests?*
11. How well did the videos/photos/links/articles enhance your learning needs?*
12. How well did online learning meet your needs?*
13. How well did the weekly format meet your needs?*
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Congratulations!

Congratulations, you have completed this course!

Your Certificate of Completion will be emailed to you after I have received your

Post-Test (must receive at least 80%) and your Course Evaluation.